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The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss, fifth edition
Ebook Download The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss, fifth edition
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Product details
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Audible Audiobook
Listening Length: 13 hours and 33 minutes
Program Type: Audiobook
Version: Unabridged
Publisher: Johns Hopkins University Press
Audible.com Release Date: April 18, 2013
Language: English, English
ASIN: B00CF9DIFI
Amazon Best Sellers Rank:
Good information. I wish I would have had it when caring for my mother.
tTHIS IS MORE OF A TEXTBOOK-----NOT FOR FAMILIES ! DON'T KNOW IF I'LL EVER GET IT READ ! TOO LONG !
This book is hard to get through, primarily because there are sections describing the suffering of dementia from the patient's perspective. When you're already grieving this diagnosis, it feels even worse to read paragraphs upon paragraphs of terror and isolation, of course imagining your own loved one going through the same thing.The sections on how to cope as a caregiver are dry but informative. A difficult truth about dementia is that you can't predict which symptoms will appear, so this book covers all of them. And it goes over some of the science behind the more frustrating symptoms, like when the patient is in total denial about their condition, which definitely helps the caregiver cope.They say this book is the bible of caring for a loved one with dementia/Alzheimers. I wish it was easier to navigate but it's definitely the most helpful guide I've read so far.
Recently cared for MIL with Alzheimer. I have a background in caring for such patients, but my wife and her sisters did not which created a lot of emotional problems. I got this book and had them read it because I couldn't get them to understand the importance of 1) never take anything she said personal and 2) If you are getting frustrated or upset leave. After reading this book they all had a better understanding of what was going on and how to cope. The writer explains in plain English so many aspects of what it is, what is going on, how to cope, how to help, etc. They had less anxiety about what to do and how to help, made life better for all, to include my MIL. I, also, feel that it helped them through some of the grief process when she passed. Strongly recommend for all family members and care-givers (professional or lay).
I wish I had bought this book as soon as my mother was diagnosed with Alzheimer's disease. My father has received very little information from my mother's doctors on what to expect as her disease progresses and more importantly, how to deal with these issues. When I received the book, I looked up her latest problem in the index, dizziness, and turned right to an informative section that helped clarify what's going on with my mom. The bathing sections are helpful for understanding and thus coping with those issues. I appreciate the depth of topics and detail for symptoms that Alzheimer's patients can have; I am also grateful for the huge emphasis on respite care for the caregiver. This gives my siblings and me another avenue of discussion in getting help for my dad, who like many spouses has his own health issues.My only problem with the current hardback edition is the text size - it's a small font and closely spaced. I would hope that future revisions would enlarge the print a bit, especially since this book is generally going to be read by adults who appreciate a little larger print.Overall I highly recommend it - I've been flipping between this book and the Mayo Clinic book on Alzheimer's, and while they both have excellent information, I feel that this book is the better one for detailed information on the myriad little things that crop up with care of a loved one with Alzheimer's disease.
This is the "Bible" as pertains to Alzheimer's/dementia. I read this book as one in our family was experiencing the disease slowly (at first) in her later years. The family could not accept or admit this was happening for so long that I needed to learn for myself from real experts. The writing is perfect for conveying the whole story, with many ifs ands and buts that make each person's experience somewhat different. In addition to the technical aspects of the body and brain as one proceeds through this disease, the book is filled with actual experiences of caregivers, patients, and doctors to give a well-rounded idea of what we are all going through, including lots of ideas on what to do about it to make life more tolerable - as much as we can. A lot of what the book is saying is that we must accept what is happening, do all we can to alleviate suffering - physical and mental - for patient, family, and any other caregivers that might be involved. I've given this book to 2 others who are involved with Alzheimer's/dementia because I think it is a must for people to understand this and deal with it as they can.
I wish my family and I had received this book when my mother was first diagnosed with dementia 2 years ago. We wandered along this path with little guidance from her g.p. or even from the (truly excellent) neurologist at the highly reputable medical school. I have read answers to questions which have been nagging at me for months (probably years now). The resources at the back are also helpful for the non-social-worker-non-medical-person which I am and which most family members of dementia patients are. This should be called, "What To Expect When a Family Member Has Dementia or Alzheimer's". It is truly a must read for anyone who has a family member with this tragic, difficult illness.
i have read many books about aging parents and dementia. this is by far the best book written on the subject. i recommend it to everyone that is dealing with this disease. whether your loved one in just starting on this journey or they are at the end, reading this will help you. it helps you understand that their actions are not them. it's the disease. it helps you not take the things they say and do to you personally. it's still hard... but it helps me sort my feelings out. you can read the chapter that you are dealing with at the time and also read it cover to cover. i recommend you read it cover to cover first, then refer back to what you are dealing with at the time.
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